Start shouting for Alzheimer's research

T.R. Reid, writing in the January-February AARP Bulletin, puts it succinctly and powerfully.

Alzheimer’s disease is “the most expensive disease in America” and it is “devouring federal and state health care budgets, and depleting the life savings of million of victims and their families.”

So, what are the federal and state governments doing about it? What kind of public resources are they committing to fighting this dangerous killer?

Too damn little, according to Reid.

He’s correct. That must change.

http://www.aarp.org/bulletin/

Reid, a former reporter for the Washington Post, notes that the “cost of caring for Americans with Alzheimer’s disease and other dementias has surpassed the cost of treatment for cancer patients or victims of heart disease.” Alzhiemer’s disease, says Huntington Potter, a University of Colorado neurobiologist, is “going to bankrupt Medicare and Medicaid.”

Let’s get busy, folks.

Alzheimer’s disease afflicts 5.2 million Americans — at the moment. The number is going to increase as the nation’s population continues to age. One projection puts the number of Americans suffering from the disease by 2050 at 13.8 million.

How has Alzheimer’s research funding stacked up to other deadly diseases? Reid writes the federal government has committed $5.4 billion on cancer research, $1.2 billion on heart disease and $3 billion on HIV/AIDS research. Alzheimer’s disease research will get $566 million.

My own interest in this disease is intensely personal. My mother died of complications of Alzheimer’s in 1984. She was 61 years of age when she died. Sixty-one! She’d exhibited symptoms for perhaps a decade.

The pain of watching a loved one lose their memory, their cognitive skill, their ability to take care of basic needs is beyond description. Take my word for it.

And that pain is going to spread as more Americans fall victim to this merciless killer.

Federal government estimates put the cost of Alzheimer’s care at about $214 billion annually. Medicare and Medicaid pay about $150 billion per year; the rest of the cost falls on patients and their families, according to Reid.

Why hasn’t there been an outcry for federal funding of this disease as there have been for cancer or HIV/AIDS? Part of it is stigma, Reid reports. U.S. Sen. Susan Collins, R-Maine, said, “I think the problem is that there’s still a stigma attached to Alzheimer’s and other dementias. People don’t want to talk about it. By contrast, LGBT groups have no qualms about campaigning for HIV/AIDS research. The cancer advocacy groups are extremely well-organized, vocal and politically skillful, with their Race for the Cure and everyone wearing pink for a month.”

I’ve made it my mission with this blog to call attention whenever possible to the need to boost attention to this disease. Its impact doesn’t just affect those who afflicted with it. It causes severe pain and anguish on care-givers and other loved ones.

The good news — if you want to call it such — is that some notable celebrities are beginning to put the word out there. One of them is Seth Rogen, the comic actor known most recently for his role in the controversial film “The Interview.”

“Americans whisper the word ‘Alzheimer’s’ because their government whispers the word ‘Alzheimers,'” Rogen told a Senate committee hearing in 2014. Rogen’s own interest has been fueled by his mother-in-law’s struggle with the disease. “It needs to be yelled and screamed to the point that it finally gets the attending and the funding it deserves.”

Well, young man, I’m with you. I’ll yell and scream for as long as it takes.

 

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